One step forward, one step back
Just spoke to Dr. Schlenk. The tumor board reviewed my case yesterday. Short version “We are all scratching our heads.”
Path report called it (sure I’m mangling this a bit and I’ll have the written report Monday and clarify) a Fibroblastic Myofibroblastic Proliferation. They think it’s a Myofibroma. That’d be good. However, the surgery was risky and to prevent risk of stroke etc he didn’t dig deep and there’s a chance he just got scar tissue (which the above would show as) and not the actual tumor it surrounds. Part of what leads them to this conclusion is that it was so hot on the PET scan.
So, new MRI next week to check against the baseline. Then they are pondering another more invasive biopsy surgery that’ll have to include a surgical Ear Nose and Throat team.
So the battle to figure out what it is so treatment can begin continues. The battle against stress is beginning to really show on the whole family.